The sorts of decisions they will be making (maybe they have already made them) are:
- What healthcare do we need.
- How much.
- The quality of the care
- Where the care will be delivered and by whom.
- How long will it take to get treated.
There will be over 200 CCGs. Our is a small one with only 190,00 people and a budget of about £200M. Others will be much bigger and responsible for very large sums of public money. So it is crucial that they use this money for the benefit of their local population and get value for money.
So how can we hold these organisations to account. It will not be easy as individuals to do so. Organisations of this sort can hide behind a number of barriers. They use the Freedom of Information Act to delay answering questions. They can also use the idea of 'Commercial Confidentiality' to avoid giving answers about the value of contracts, especially with private healthcare providers. They also use jargon to confuse us. Lastly one of the ways to ask them questions is at board meetings held in public and that isn't easy for many people. It isn't much fun standing up in from the board and holding them to account.
However there are a number of ways that the public can make sure they spend our money wisely and on healthcare that will benefit us.
Ask questions at meetings
CCG boards will have to hold their meetings in public and publish the board papers online. Go to meetings and ask questions. CCGs will also hold other so called 'engagement' meetings so please go along and ask awkward question.
Join your Practice Participation Group (Patient Reference Group)
Each GP surgery should have a group of patients, perhaps as an virtual group, who support the practice in many ways. They can ask questions of the GPs who in turn can ask questions of the CCG. Our CCG intends to have a Patients Forum with one person from each practice participation group on it. Exact details are current unknown. The patients will need to set the agenda not the CCG.
Service User Groups
If you have a long term condition join the service user group/support group or set one up. They may be able to ask questions about specific services as they are often considered as 'experts'. These groups are often used when services are being redesigned or changed.
These groups will be taking over the role of the Local Involvement Networks on April 1st. They will act as the patients champion and should be seeking the views of patients and the public about the health and social care services. They will be monitoring the quality of services and holding the CCGs to account if the services are not benefiting patients. These groups will be as new as the CCGs and will take time to become effective. Anyone can join a Local Healthwatch and support their activities.
Our CCG intends to have an 'accountability forum'. Each practice will have a GP on the forum and their role is to hold the CCG to account on behalf of the GPs and the practices. Even more reason to get involved in your practice participation group so you can influence the GPs.
Local Health and Wellbeing Boards
This is a joint Council & CCG body that is responsible for strategic thinking and priority setting for health and social care. A lay person from the Local Healthwatch will be a member. CCGs should be answerable to the board to show it is matching commissioning to the health needs of the population. How it will hold the CCGs to account remains to be seen but it could be quite powerful.
Health Overview and Scrutiny Committees
This is a Council committee that monitors the commissioning and delivery of services and can hold the CCG to account. The meetings are in public and you can go along and ask questions.
CCG Governance procedures
CCG are required to hold meetings in public, publish their papers online and to publish the methods they use to make decisions. We should make sure that they actually do use those methods when making decisions about our healthcare. There will be much talk of the use of 'evidence' and we need to make sure they use all the evidence and analyse it in a consistent manner.
Lay people on the CCG board
Each CCG is required to have two lay people on the board and one of those must act as 'the patient and public involvement' champion. Find out who it is and make sure they act on our behalf.
NHS Commissioning Board
The new NHS reform act makes sure that the CCGs will be accountable for their performance to this national organisation. But there is nothing in the act to make the CCGs accountable to us.
The CCGs will be accountable to this national organisation for their financial performance.
Those of you who have read my previous blogs about patient involvement might notice some similarity to this one. I feel this is inevitable since the two processes of involvement and accountability are two sides of the same coin. Both rely on good communication and trust. The same limited number of organisations are going to be active in the involvement process as well as the accountability process.
Meaningful and effective involvement of patients, at an early stage of decision making, and in a sustained manner throughout the process will enhance the trust that the public have in the CCGs. The accountability process will follow naturally from the involvement of patients and the public in decision making.
There seem to be very few ways in which individuals can hold their local CCG to account. So it looks like you will need to join one or more of the organisations mentioned above if you want to make sure the CCG does what it is meant to do and 'make no decision about me, without me'.
The trouble with joining an organisation is that you hope that the person representing you is able to stand up to the CCG board. Will the CCG take more notice of that person than the opinion of an individual?
Lets hope that the evolving CCGs will be different from the old PCTs. and that they will act in an honest and transparent manner so we can be assured that they are working on our behalf.